So we have been here at Primary Childrens since Friday afternoon on our second round of methotrexate this month. We actually got a two day break last week, it was pretty nice. This one hasn't been quite as bad as it was last week. We have I think one of the best rooms up here, a bigger chair to sleep on makes mom a lot happier:) The blisters on her feet started last night and for some reason she started running a fever. We never know what chemo is going to do to her, it's always something different every time.I just don't get it, it's the same drug the same doseage going at the same rate and every time we have a different reaction. We decided yesterday to have the Ativan by mouth instead of IV and she was actually able to stay awake all day and wasn't nauseated. Today we are not even taking Ativan so she's been eating all day. Right now she is eating a big plate of vegetables with Ranch dip!!! It's good to see her feeling better. Her level has to be at .10 to leave and she was at .38 this morning. We are hoping for tomorrow. Today she decided to venture out so we went to the gift shop and then to the patio to catch some fresh air. It was so nice to get out of this room. This is a huge step for her, last week I had to beg her to go for a walk, this week she was all for it.
We have 6 more treatments left and can hardly wait. Everytime we here the bell ring down the hall we get excited for the day we get to ring the "no more chemo bell". It will be a glorious day. All the doctors and nurses and Tech's on this floor are amazing, we have made some great friends here, they are like family now, that's really sad, I see them more than I do my own family.
We get to tend the baby tonight and Maddie keeps asking me when she will be here. She's kind of excited. It's been hard to watch her friends go back to school and not be able to join them. I know it is bugging her but she's a trooper and knows that this is more important right now. Thanks again to all her friends that have visited or called or texted her, it really does make a difference. We couldn't have make it this far without the support. love and prayers of friends, family and neighbors we love you all:)
P.S. Happy Birthday Rory!!! We love you:)
Saturday, August 13, 2011
She got home on Friday just in time to get ready for her shopping spree, given to her by the Make a Wish Foundation. On Saturday afternoon this big Escalade Limo pulls up and the shopping began. She had already picked out most everything she wanted and much to our surprise, most of the stores were willing to hold her stuff until we came to pick it up. It was a blast watching her and seeing her smile. We were moved to tears at Guitar Center when the store manager decided to give her the electric guitar instead of letting us buy it. What a great bunch of
guys. One things for sure we are continually blessed to meet such loving and caring people on
this journey we are on. Maddie has a way of melting people's hearts that is amazing to watch.
When we arrived home we only had a few minutes to get ready for the Tim McGraw concert. A girl I work with had her dad get us tickets. We were once again touched by the generosity of others. We had lawn tickets and we were supposed to meet up with Casey to have him get us better seats, well to make a long story short they ended up giving us their tickets on the fourth row, a Tim McGraw hat and a signed Tim McGraw tee-shirt. I don't know how the day could have been any better!!! The pictures will tell it all. Happy Birthday Maddie!!!
|Girls Camp 2011 "Be Beautiful to Him"|
|Riding in Style|
|Girls night out:)|
Posted by MaddieCook at 2:30 PM